Fore The Angels: Vivi’s Golf Classic
Since the day Vivi was born, Rachel and Eman sensed something was different about Vivi. As time went on, she started showing delays that were addressed with therapies and specialist appointments. Fast forward to September of 2024, they recieved news that Vivi's genetic test came back positive for Angelman Syndrome, which is loss of function of the UBE3A gene in the 15th chromosome derived from the mother.
From the day forward, it was Rachel's mission to advocate to spread awareness.
One way both Eman and Rachel felt as if they could spread awareness was hosting a golf fundraiser, where all proceeds will be directly donated to the Angelman Syndrome Foundation, who do so much for the families that are directly impacted by Angelman Syndrome.
The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.
Get your clubs ready, practice your swing, and tee off for a great cause at The Oaks Golf Course! Whether you’re a seasoned pro or a beginner, this event is perfect for all skill levels. Enjoy a day of golfing, good company, and supporting our angels.
If you'd like to make a monetary donation, or donate a raffle item, please contact Rachel at raehartberg@gmail.com
